There’s a great chronic illness & disability podcast I found a few months after starting this blog called In Sickness & In Health.
She’s such a fount of knowledge so I was humbled when she asked me to talk with her last weekend about being on her podcast. I was delighted to do so.
I’ve been on another podcast awhile back but that hasn’t posted yet. When it does, I’ll link to it. I think podcasts as a whole are a great way to share information.
There’s more to our conversation she’ll post in another episode at a later date. I think she did well dividing the conversation in two episodes.
I figured I would share this episode that is posted for those who may not be that active on social media and who want to check it out. (For luddites: podcasts only require a set of headphones, they are audio based programs. No fancy video tools required.)
I also want to share a book that I came across some time ago that might prove useful to some.
Many people have told me over time in my volunteer journey that they want to be better self-advocates. I learned as I went, like anyone, but the author of Sick Girl Speaks, Tiffany Christensen, (who I also mentioned in a previous post), has a very helpful guide out called: Finding Your Voice in the Healthcare Maze: A Patient Advocacy Workbook.
I sincerely wish that this had been around at the start of my journey. It’s written well & a good starting point for people to build their own roadmaps from for those who may not really know how to begin.
It’s older, copyrighted in 2009, but still a good resource worth checking out for people. Even though Tiffany is a double lung recipient twice over, I love how she makes all her writing relatable to many, just using transplant & her experiences as a spring board as an illustration for advocacy.