Long Time No Update

On December 2, I’ll be at 2 years post transplant.   In some ways it doesn’t seem it’s been that long, in other aspects it seems longer.

I had another blip in my lung function again but rebounded again.  I guess this is just an annual dip due to weather changes.  Which I’m not really surprised by.  I’ve always had sensitivity to changes in season.

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“Support” Staff Blocking Care

I’ve had a few instances now where I’ve really lost patience with healthcare staff as of late.  As have other friends with their situations.  It’s a growing trend that needs to be addressed.  Some of these support staff are anything but.

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NaNoWriMo 2017: Plotober is Here

For the past two years I’ve written a novel for National Novel Writing Month.  It was a welcome distraction & radical departure from my life.

It also disciplined me to write 50,000 words in 30 days, which seemed really daunting at first but was actually doable.

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Article: When You Treat A Rare Patient Like A Common One – Bad Things Happen

I came across this article in Rare Disease Report & it did send chills through my body.

Although, it did not completely surprise me (as horrible as that sounds).

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Review: Pill Drill

It’s been a moment since I’ve done a review.  This is partially due to not receiving some of the things I’ve backed just yet.

Still, I came across something fascinating & that I was lucky enough to receive a discount on the package in exchange for doing some user testing  & exchanging feedback.   I was so happy I did.

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REBLOG: When Delivery Is Not A Luxury

I think Esme has an excellent point with this blog post.

I am extremely fortunate in that I have lived with friends for several years & when I’ve been sick or not feeling well they’ve always been the first to pitch in to help.

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REBLOG: Dear Pennsylvania Governor Tom Wolf, Can We Talk Medical Marijuana From A Chronically Ill Person’s Perspective?

This is still a hot topic. I know I discussed this awhile ago in a past post. I discussed it then more in the context of how I also have some friends here in the PA area that worked diligently for a few years to get the PA Bill passed.

That said, I think Brittney’s post (Brittany is one of my fellow bloggers from the Chronic Illness Blogger Network) is great & brings up additional food for thought.

I think she makes some excellent points.

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