REBLOG: Dear Pennsylvania Governor Tom Wolf, Can We Talk Medical Marijuana From A Chronically Ill Person’s Perspective?

This is still a hot topic. I know I discussed this awhile ago in a past post. I discussed it then more in the context of how I also have some friends here in the PA area that worked diligently for a few years to get the PA Bill passed.

That said, I think Brittney’s post (Brittany is one of my fellow bloggers from the Chronic Illness Blogger Network) is great & brings up additional food for thought.

I think she makes some excellent points.

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REBLOG From Counting My Spoons: Why Don’t We Ask For Help?

This reblog comes someone I deeply respect & admire.

She runs our Chronic Illness Blogger Network & sometimes gets us some things to review or a little something in return for a sponsored post.

She also has gotten us into an organized group of our own to toss around ideas.   I really enjoy the people I’ve met as a part of it.

On top of this, she cares deeply about the other bloggers she knows & can relate to the struggles of chronic illness.

Julie Ryan, thank you for reaching out to me & asking me to join the Chronic Illness Blogger Network.  I have learned so much & have had my creativity challenged which is always a good thing.

Julie’s blog is really excellent.  It’s called Counting my Spoons.   This month I’ll be featuring some of Julie’s content & posts I’ve found extremely insightful & helpful.

I hope you will too.

Here’s the first:

Why Don’t We Ask For Help?

This was especially applicable for me to read because I’ve always struggled with this.  I’m almost too stubborn & self sufficient at times, when I really shouldn’t be.    But I really love what Julie explored in this post.   So much of it resonated with me.

I bet it will with you, too.

(Photo credit: Photo taken from Julie’s “About Me” page.)

ALT SHIFT X: Lung Transplant Video

I really like this video.

It’s a good quick primer of a lung transplant.

It also talks about chronic rejection.    It does all of this in layman’s terms.

I think it helps those who may be supporting people going through a lung transplant understand this whole journey better without being too technical or with a slew of medical jargonese.

From Everyday Feminism: 6 Ways Your Social Justice Activism Might Be Ableist

One of my transplant friends had this article posted to her social media page.

I actually really like it & think it makes so much sense. It also explains the damage that ableism does in really succinct & practical ways.

It’s by no means a complete list, but certainly is a relatable one.

Definitely share-worthy.

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Article: Watch Touching Heart Transplant Story About LSU, Auburn Fans

I’m not one for football.

I never have been (though I have tried to be at times), but I couldn’t resist sharing this unique story.

Especially because it involves babies, who are the tiniest yet fiercest warriors I know at times.  Their resilience always humbles me.

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From NHS Trust: Transplant Patient Comes Face To Face With His Old Heart

This article really struck a cord as I read it.   It reminds me of the reasons why I filled out a consent form to donate my old lungs to LAM research & also at least get tested to see if any of my other organs or tissues could be donated to someone who needed them.

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HB30: PA Organ Donation Advocates Band Together To Support Lifesaving Legislation

The last time I heard about this issue, I bugged my state representatives about this  important piece of legislation that affects organ donation here in PA.

I see I will be doing more of the same soon as help is needed again.

In trying to make sure HB 30 passes,  so much good information has been circulating as to how critical this bill really is. (Moreso than I initially heard about).

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Working It All Out…

My pulmonary rehab at my local hospital is twice a week. Those sessions are around an hour or hour & half.  I recently asked permission to get some extra time in somewhere.  I heard them talk about the fitness center at my local hospital.

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REPOST: How Nice, She Included A Map

I was completely irked when I read my partner-in-crime’s post the night she put it up.

I happened to be catching up on WordPress & always make time to catch up on her blog since she was one of my first friends I made blogging.

She has become a great friend since.

But this post had me fuming for her.

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Fear of the Unknown

Recently, I found another LAM sister came to my center to dual list after essentially getting the run around from another center in NY.  I refuse to name this center but have often butted heads with on how they manage women with my disease.

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