All Good Things…Well, You Know…

I haven’t been updating this because I’ve had my hands full with grad school, life, and medical appointments.

I will be keeping this blog up for archive purposes because I think it might be useful for some people in the many communities I’m a part of but admittedly, I’m burnt out of maintaining it.

Perhaps later that may change, which is another reason I’ll keep it up, but I’m going to take a break from blogging & shift gears to other things for awhile.

Thank you for the support since I started this.  I truly appreciate it.



Long Time No Update

On December 2, I’ll be at 2 years post transplant.   In some ways it doesn’t seem it’s been that long, in other aspects it seems longer.

I had another blip in my lung function again but rebounded again.  I guess this is just an annual dip due to weather changes.  Which I’m not really surprised by.  I’ve always had sensitivity to changes in season.

Continue reading

Passed The Year & A Half Mark

It’s been awhile since my last update.  In April, I had a procedure that kept me overnight & was my first surgery after transplant.  I have one more procedure after Labor Day, hoping this is the last of it for a good stretch.  This is the flare up of my TSC which usually acts up after the LAM settles down.

Continue reading

“Support” Staff Blocking Care

I’ve had a few instances now where I’ve really lost patience with healthcare staff as of late.  As have other friends with their situations.  It’s a growing trend that needs to be addressed.  Some of these support staff are anything but.

Continue reading

Ableism in the Academy–It’s What’s For Breakfast

This was a thought provoking post. I realize that disabled identity is a complex issue within many communities & I had my own thoughts but the insights here are so powerful I felt this was worth a reblog. I believe the root cause here is as SK points out the assumption that physically challenged bodies are someone else’s issue. This long held belief also takes root in the complexities that many people who identity as having invisible disabilities also face. This post addresses academia, but I’ve felt many of these insights in other aspects of my life outside academia. But it’s a great springboard into many other conversations…Thank you Stephen Kuusisto for this post & your permission to reblog it. I’m happy to have connected with you on WP.

Planet of the Blind

Ableism is akin to racism or homophobia but with one difference: the assumption that physically challenged bodies are “someone else’s issue” remains largely unexamined outside academic or activist circles within disability communities.   

—Stephen Kuusisto, before his first cup of coffee

You can’t include the disabled in whatever is meant by “diversity” until the problem above is addressed. 

—Kuusisto after his second cup of coffee  

That the disabled belong in special offices, sequestered environments, is a a hangover from the 19th century. Just as people of color or women still experience cruel 19th century headaches, the disabled do also. The academy taught racial separation, “the White Man’s Burden”, eugenics, and promoted the medical and psychological inferiority of women and people of color throughout the 1800’s and long into the 20th. The hierarchies of post-secondary-education in the U.S. remain in an amnesiac state—you see, I’ve even chosen an…

View original post 279 more words