I haven’t been updating this because I’ve had my hands full with grad school, life, and medical appointments.
I will be keeping this blog up for archive purposes because I think it might be useful for some people in the many communities I’m a part of but admittedly, I’m burnt out of maintaining it.
Perhaps later that may change, which is another reason I’ll keep it up, but I’m going to take a break from blogging & shift gears to other things for awhile.
Thank you for the support since I started this. I truly appreciate it.
On December 2, I’ll be at 2 years post transplant. In some ways it doesn’t seem it’s been that long, in other aspects it seems longer.
I had another blip in my lung function again but rebounded again. I guess this is just an annual dip due to weather changes. Which I’m not really surprised by. I’ve always had sensitivity to changes in season.
This note from Jason Kander really hit home. Though I have not served in the military I understand the stigma & bias surrounding PTSD.
It’s been awhile since my last update. In April, I had a procedure that kept me overnight & was my first surgery after transplant. I have one more procedure after Labor Day, hoping this is the last of it for a good stretch. This is the flare up of my TSC which usually acts up after the LAM settles down.
Why is it the only time we can bring ourselves to talk about mental health issues out in the open is after a celebrity suicide?
I’ve had a few instances now where I’ve really lost patience with healthcare staff as of late. As have other friends with their situations. It’s a growing trend that needs to be addressed. Some of these support staff are anything but.