Hi! Remember Me? I’m TSC!

I had another check up Thursday.  My lungs are still doing great,  but I wish I could say the same about my kidneys.

I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.

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Draft of FDA Testimony

Representing the TS Alliance & The LAM Foundation both when it counts in research & behind the scenes has been something I have championed for a very long time as my health has allowed.

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65 Percent –New Transplant Doc

I found out about this movie much too late to back their crowdfunding campaign, but even then I was intrigued.

I found The Wave Set on social media & reached out to them wondering when the film would be released.

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