I signed on to be a beta tester for this device a few weeks ago, maybe it’s a month or more now. (Things have been kind of a whirlwind). I was excited when I received the package with the Myspiroo because it’s a smart phone spirometer, which I have been hoping for even before I was transplanted.
I was just talking to some transplant recipients down here this weekend at the Gift of Life Family House where I stayed after this hospitalization & realized I hadn’t posted an update to my blog in awhile.
This is by far the hardest post I’ve had to make. I’ve endured many significant losses in my life. Some of them I’ve posted about here. But this is by far the toughest. I’m grasping for words.
Last night, I celebrated my one year transplant anniversary. At that time in 2016, I was coming off the ventilator & breathing my first new breaths on my own.
I still remember those moments. Still remember crying when my surgeon showed me my first x-ray of my lungs.
I posted this to another social account. But I felt it was worth sharing here:
I’ve made a tough call. I’m not abandoning my play, just setting it aside for now.
A few months ago, my numbers were unexplainably down about 30 perecent.
After some steroid pushes & medication changes, things were still looking a bit funky & my numbers still hadn’t risen, so I needed another bronchoscopy (scope of my lungs).
I had to start using an Accu-chek meter, since I lost the headphone jack when I upgraded my iphone (for free) recently.
My Dario meter, which I loved, couldn’t be guaranteed accurate with using the new Apple dongle/adapter.
They are working on a compatible replacement part but it still has to go through FDA approval so who knows how long that will take.