I think it’s fitting that my local oxygen supplier called me this morning to arrange for a pick-up of my oxygen on Rare Disease Day.
One of the things that happened after my lung transplant was that I became diabetic from the high amount of steroids they give us.
I have been away awhile.
Since the last update I did have to go back to the hospital and was there most of January.
Turns out, the rest of my body didn’t like my first set of drugs (cocktail). I’ll spare all the gory details, but it WAS NOT fun.
I was in the hospital almost a month having my anti -rejection drugs evaluated. The team seemed torn whether I was actually sick with a bug at first with the way it happened or if I was having reactions from the drug cocktail and that in turn caused the agony. I don’t think they found out for sure, except I tested clean for anything that was going around as far as bugs.
I thought these holidays would take me out. I had 3 days in a row at the hospital this week & will next week. But I did ok. I can do a bit more each day.
I wrote this poem a few months ago. It just came to me in the night during a tough night during the wait. I even think it might have been a few days after my first dry run in July.
I completed my first week of post transplant rehab. I did a mile on the treadmill in about 25 minutes which I wasn’t sure I’d be moving at that great a clip so soon. So that was a pleasant surprise.