It’s been awhile since my last update. In April, I had a procedure that kept me overnight & was my first surgery after transplant. I have one more procedure after Labor Day, hoping this is the last of it for a good stretch. This is the flare up of my TSC which usually acts up after the LAM settles down.
After so many different tests & workups, I found out that I can no longer eat chicken or beef. I’ve developed an intolerance to them.
While I’m still struggling some with morning nausea, a good amount of my stomach issues have abated since figuring out this intolerance which is a relief.
I still have my occasional attacks, but they are fewer & farther between.
Before I figured this out, there were at least 3 days a week that I was eating nothing but mashed potatoes or rice because my stomach couldn’t tolerate much of anything else. I’d get significant pain, bloating, & illness after eating. I literally could feel the distention come on.
I had a full workup & no abnormalities were detected.
I have to give credit to my friends for helping me fix this, as they were the ones that suggested I try going vegetarian for a month.
I started around my birthday in May. I was feeling significantly better a month later.
If I really crave meat, then I have fish so I guess I’m technically pescatarian now. Beyond Meat is a good substitute for me & I found that Fridays makes a good burger from them. This is no small feat as I still avoid soy because of LAM. So many meat substitutes are soy based.
I tolerated bacon for awhile too but now I can’t. I had two strips about a week ago & spent a few days feeling very off & ill.
Kind of bummed about that, but I have faith I can find some sort of substitute for that in time.
I’m curious if this happened to others after their transplant, where they couldn’t eat or tolerate certain foods anymore?
I know Gastroparesis (a disease that impacts stomach emptying & digestion) is a big issue in the transplant community because quite often especially during lung transplants the vagus nerve is cut or damaged.
I’m just wondering for those of us who don’t have it, if anyone else has gone through this experience of being fine eating certain foods prior to transplant & then not being able to tolerate them at all after?
If so, feel free to share in the comments.