One of my volunteer friends died a few days ago. A few mutual friends & I were talking not just about memories but also some really raw & visceral reactions from others in regards to our friend’s death being made public.
I promised to be honest when I started my blog to not just report all the “good stuff” all the time, because like any path, the transplant path has fits & starts, blips, & snags. Mine, overall despite being annoying, have been small. Yet, it’s frustrating at times.
I had another check up Thursday. My lungs are still doing great, but I wish I could say the same about my kidneys.
I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.
This is my morning cocktail of current meds. Continue reading
This was a professional issue that would irk me while I was working at Medscape. I’d see such embargoes come through via email on important information & it would instantly anger me.
I would think to myself, “This is a free press, if you’re going to release important news, release it when you want it released. Don’t hold everyone hostage to print it all on a certain day or under your chosen timing & make them sit on it because you’re not ready for it to come out yet. Don’t be an effing tease.”