If you’re lucky enough to have a health system that offers a mobile lab draw, do it.
My primary care doctor found this option for me, and I feel much safer. They come to my house, and I set up a table and chair in the driveway, and they draw the blood.
They also come in full PPE if you request it, but at minimum gloves and a mask.
I’m just sure to wipe everything I use down before and after. But it sure beats braving a waiting room or going to an office.
Evidently, my health system has had this in place for about 5 years, but hardly any doctors or patients knew about it until very recently.
I just thought I’d pass along this tip for anyone who could use it.
On December 2, I’ll be at 2 years post transplant. In some ways it doesn’t seem it’s been that long, in other aspects it seems longer.
I had another blip in my lung function again but rebounded again. I guess this is just an annual dip due to weather changes. Which I’m not really surprised by. I’ve always had sensitivity to changes in season.
It’s been awhile since my last update. In April, I had a procedure that kept me overnight & was my first surgery after transplant. I have one more procedure after Labor Day, hoping this is the last of it for a good stretch. This is the flare up of my TSC which usually acts up after the LAM settles down.
Why is it the only time we can bring ourselves to talk about mental health issues out in the open is after a celebrity suicide?
I’ve had a few instances now where I’ve really lost patience with healthcare staff as of late. As have other friends with their situations. It’s a growing trend that needs to be addressed. Some of these support staff are anything but.
I haven’t posted a personal update in a minute. Part of it is because I’m extremely worn & frustrated & I don’t want that to bleed out and be perceived as whiny. I know it couldn’t be farther from the truth & it’s not, but still this is what my head tells me sometimes.
Even though I constantly tell other friends with transplants who feel similarly that they are doing anything but.
While rather lengthy this update encapsulates a few months of frustrating experiences which I felt important to share with others.
I signed on to be a beta tester for this device a few weeks ago, maybe it’s a month or more now. (Things have been kind of a whirlwind). I was excited when I received the package with the Myspiroo because it’s a smart phone spirometer, which I have been hoping for even before I was transplanted.
I was just talking to some transplant recipients down here this weekend at the Gift of Life Family House where I stayed after this hospitalization & realized I hadn’t posted an update to my blog in awhile.
There has been much buzz on both sides of the fence in healthcare about the recent news articles concerning the Apple Health app.
I posted this to another social account. But I felt it was worth sharing here: