For the past two years I’ve written a novel for National Novel Writing Month. It was a welcome distraction & radical departure from my life.
It also disciplined me to write 50,000 words in 30 days, which seemed really daunting at first but was actually doable.
A few days ago (on 9/2) I made my 9 month transplant anniversary.
A few weeks before that I had another bronchoscopy because my numbers were down.
All appears to be OK. No rejection. That’s good.
I’m hoping the fall brings better breathing numbers.
This is germane to not only events in a America right now, but also disparities in healthcare.
The past few weeks have been a bit tough. My breathing numbers were down at my last visit at the end of July, so I have a bronchoscopy (a test where they scope your lungs to take a look) scheduled for later this month. It might not be anything to worry about, but better safe than sorry. Continue reading
I hadn’t done a review in awhile because I had my nice little arsenal of health stuff. Recently I had to make some changes. One was prompted from getting a case of breakthrough oral thrush after a change in some medicines. The other was because I finally made the leap to get an iphone 7plus since I was due for an upgrade.
I was notified a little over a month ago that I was selected for the first-ever American Society of Transplantation (AST) Patient Summit in October.
Again, a rare occurrence to get political on my blog. Because whether people agree with me or not, this is a matter of life & death. The AHCA/BCRA must not pass!
I do not joke about death. Yet, after asking nicely with no movement & amendments sure to get worse, I know no other way to get through.
The 13 authors don’t want to be called heartless or murderers then don’t pass this cruel bill.
Some may say it’s extreme, but I’m tired of playing nice & being ignored, & getting canned responses about how I must take more personal responsibility when I’ve taken plenty.
I’ll be sending this mock obituary through to my delegation tonight because I think they need to see the consequences of a “Yes” Vote: