I hadn’t done a review in awhile because I had my nice little arsenal of health stuff. Recently I had to make some changes. One was prompted from getting a case of breakthrough oral thrush after a change in some medicines. The other was because I finally made the leap to get an iphone 7plus since I was due for an upgrade.
Tag Archives: transplantation
2017 Transplant Patient Summit
I was notified a little over a month ago that I was selected for the first-ever American Society of Transplantation (AST) Patient Summit in October.
Me Without Healthcare….
Again, a rare occurrence to get political on my blog. Because whether people agree with me or not, this is a matter of life & death. The AHCA/BCRA must not pass!
I do not joke about death. Yet, after asking nicely with no movement & amendments sure to get worse, I know no other way to get through.
The 13 authors don’t want to be called heartless or murderers then don’t pass this cruel bill.
Some may say it’s extreme, but I’m tired of playing nice & being ignored, & getting canned responses about how I must take more personal responsibility when I’ve taken plenty.
I’ll be sending this mock obituary through to my delegation tonight because I think they need to see the consequences of a “Yes” Vote:
The Death of Compassion
I was down for a check-in yesterday with my Diabetes Nurse Practitioner. It was good news. Continue reading
65 Percent –New Transplant Doc
I found out about this movie much too late to back their crowdfunding campaign, but even then I was intrigued.
I found The Wave Set on social media & reached out to them wondering when the film would be released.
4 Months Down…
Life with transplant is challenging no matter how much someone tries to prepare themselves for it.
I’m a little over 4 months post transplant now, & while I am definitely doing well (knock wood) not every day is as easy at it may appear.
Movie Review: Going In Style
For the past few years it was pretty hard for me to see movies.
For one, I was worried about my oxygen tank running out (I had one leak in the theatre once) & it was hard to fit it in the seats even in the disabled seating area.
(Even when I had my portable concentrator I was self conscious about if it was making too much noise even when it was stowed under my seat.)
But now, post transplant I find I can go to a matinee & enjoy myself without having to worry too much about crowds & germs (I do carry my mask in case).
My attention is also better.
It’s a relief because I really do enjoy movies, documentaries especially.
A Tiny Blip…
Just before my last appointment, I found out I had A1 rejection.
This is very common in the first year of transplant & sometimes even happens to people in the hospital before discharge from their surgery.
It’s the most minimal rejection there is.
Update – Resume Rehab Monday
I was in the hospital almost a month having my anti -rejection drugs evaluated. The team seemed torn whether I was actually sick with a bug at first with the way it happened or if I was having reactions from the drug cocktail and that in turn caused the agony. I don’t think they found out for sure, except I tested clean for anything that was going around as far as bugs.
Transplant Toys – Trying To End The WaitList
I’ve said before I’m an overstuffed kid. But I really have a soft spot for companies & nonprofits that raise transplant awareness through toys.
AS I LIVE & BREATHE 