9 Months…

A few days ago (on 9/2) I made my 9 month transplant anniversary.

A few weeks before that I had another bronchoscopy because my numbers were down.

All appears to be OK.  No rejection.  That’s good.

I’m hoping the fall brings better breathing numbers.

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“Stepping Up” My Exercise

The past few weeks have been a bit tough.  My breathing numbers were down at my last visit at the end of July, so I have a bronchoscopy (a test where they scope your lungs to take a look) scheduled for later this month.  It might not be anything to worry about, but better safe than sorry.  Continue reading

Tiny Bubbles, Er… I Mean Blips

I promised to be honest when I started my blog to not just report all the “good stuff” all the time, because like any path, the transplant path has fits & starts, blips, & snags.  Mine, overall despite being annoying, have been small.  Yet, it’s frustrating at times.

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Me Without Healthcare….

Again, a rare occurrence to get political on my blog.  Because whether people agree with me or not, this is a matter of life & death.  The AHCA/BCRA must not pass!

I do not joke about death.  Yet, after asking nicely with no movement & amendments sure to get worse, I know no other way to get through.

The 13 authors don’t want to be called heartless or murderers then don’t pass this cruel bill.

Some may say it’s extreme, but I’m tired of playing nice & being ignored, & getting canned responses about how I must take more personal responsibility when I’ve taken plenty.

I’ll be sending this mock obituary through to my delegation tonight because I think they need to see the consequences of a “Yes” Vote:

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Hi! Remember Me? I’m TSC!

I had another check up Thursday.  My lungs are still doing great,  but I wish I could say the same about my kidneys.

I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.

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