When Other Medical Teams Fail Their Transplant Patients

I haven’t posted a personal update in a minute.   Part of it is because I’m extremely worn & frustrated & I don’t want that to bleed out and be perceived as whiny.  I know it couldn’t be farther from the truth & it’s not, but still this is what my head tells me sometimes.

Even though I constantly tell other friends with transplants who feel similarly that they are doing anything but.

While rather lengthy this update encapsulates a few months of frustrating experiences which I felt important to share with others.

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Review/Beta Testing: MySpiroo

I signed on to be a beta tester for this device a few weeks ago, maybe it’s a month or more now.  (Things have been kind of a whirlwind).  I was excited when I received the package with the Myspiroo because it’s a smart phone spirometer, which I have been hoping for even before I was transplanted.

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Blink Health Pricing Sometimes Beats GoodRx

I had to start using an Accu-chek meter, since I lost the headphone jack when I upgraded my iphone (for free) recently.

My Dario meter, which I loved, couldn’t be guaranteed accurate with using the new Apple dongle/adapter.

They are working on a compatible replacement part but it still has to go through FDA approval so who knows how long that will take.

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Journey To Now

I honestly forgot about this event until last night when I received a reminder email & updated agenda.  My local hospital was having a one-day symposium at a nearby campus & a few months ago had asked me to be part of a roundtable about lung transplant.   It finally hit me last night that we are at the end of the month.

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9 Months…

A few days ago (on 9/2) I made my 9 month transplant anniversary.

A few weeks before that I had another bronchoscopy because my numbers were down.

All appears to be OK.  No rejection.  That’s good.

I’m hoping the fall brings better breathing numbers.

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Review: Kinsa Smart Ear Thermometer

I hadn’t done a review in awhile because I had my nice little arsenal of health stuff. Recently I had to make some changes.  One was prompted from getting a case of breakthrough oral thrush after a change in some medicines.  The other was because I finally made the leap to get an iphone 7plus since I was due for an upgrade.

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