I hadn’t done a review in awhile because I had my nice little arsenal of health stuff. Recently I had to make some changes. One was prompted from getting a case of breakthrough oral thrush after a change in some medicines. The other was because I finally made the leap to get an iphone 7plus since I was due for an upgrade.
Tag Archives: healthcare blogging
Tiny Bubbles, Er… I Mean Blips
I promised to be honest when I started my blog to not just report all the “good stuff” all the time, because like any path, the transplant path has fits & starts, blips, & snags. Mine, overall despite being annoying, have been small. Yet, it’s frustrating at times.
Me Without Healthcare….
Again, a rare occurrence to get political on my blog. Because whether people agree with me or not, this is a matter of life & death. The AHCA/BCRA must not pass!
I do not joke about death. Yet, after asking nicely with no movement & amendments sure to get worse, I know no other way to get through.
The 13 authors don’t want to be called heartless or murderers then don’t pass this cruel bill.
Some may say it’s extreme, but I’m tired of playing nice & being ignored, & getting canned responses about how I must take more personal responsibility when I’ve taken plenty.
I’ll be sending this mock obituary through to my delegation tonight because I think they need to see the consequences of a “Yes” Vote:
Hi! Remember Me? I’m TSC!
I had another check up Thursday. My lungs are still doing great, but I wish I could say the same about my kidneys.
I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.
A Bothersome Statement
I’ll be posting a bit more often this month because I want to support the first WorldWide LAM Awareness Month.
Draft of FDA Testimony
Representing the TS Alliance & The LAM Foundation both when it counts in research & behind the scenes has been something I have championed for a very long time as my health has allowed.
World Wide LAM Awareness Month
Today marks the start of the first ever LAM Awareness Month. June first was always LAM Awareness Day for several years prior. This year, it became an official awareness month.
“I Am Somebody, But Part Of Me Is Somebody Else.”
Yesterday was an emotional day for me. I turned 40. Continue reading
The Death of Compassion
I was down for a check-in yesterday with my Diabetes Nurse Practitioner. It was good news. Continue reading
65 Percent –New Transplant Doc
I found out about this movie much too late to back their crowdfunding campaign, but even then I was intrigued.
I found The Wave Set on social media & reached out to them wondering when the film would be released.
