I had another check up Thursday. My lungs are still doing great, but I wish I could say the same about my kidneys.
I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.
I’ll be posting a bit more often this month because I want to support the first WorldWide LAM Awareness Month.
Representing the TS Alliance & The LAM Foundation both when it counts in research & behind the scenes has been something I have championed for a very long time as my health has allowed.
Today marks the start of the first ever LAM Awareness Month. June first was always LAM Awareness Day for several years prior. This year, it became an official awareness month.
Yesterday was an emotional day for me. I turned 40. Continue reading
I was down for a check-in yesterday with my Diabetes Nurse Practitioner. It was good news. Continue reading
Life with transplant is challenging no matter how much someone tries to prepare themselves for it.
I’m a little over 4 months post transplant now, & while I am definitely doing well (knock wood) not every day is as easy at it may appear.