Hi! Remember Me? I’m TSC!

I had another check up Thursday.  My lungs are still doing great,  but I wish I could say the same about my kidneys.

I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.

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A Tiny Blip…

Just before my last appointment, I found out I had A1 rejection.

This is very common in the first year of transplant & sometimes even happens to people in the hospital before discharge from their surgery.

It’s the most minimal rejection there is.

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iPhones & Healthcare…

I promised I would keep politics out of my blog.

I’ll hold to that outside of commenting on recent events about a “witty” sound byte made by a public official about healthcare.

To me, it’s been a nonpartisan issue for years.   I can’t keep my mouth shut any longer.

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Staying The Course

Yesterday I had a check-up with my nurse practitioner & doctor.  I’m doing so well I won’t need a bronchoscopy (it’s a procedure where they go into your lungs & check for potential rejection/infections/other problems) for another 3 weeks or so.

Those of us post lung transplant know what a big deal that is.  Continue reading

There’s No Place Like Home

I have been away awhile.

Since the last update I did have to go back to the hospital and was there most of January.

Turns out, the rest of my body didn’t like my first set of drugs (cocktail).  I’ll spare all the gory details, but it WAS NOT fun.

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