“Stepping Up” My Exercise

The past few weeks have been a bit tough.  My breathing numbers were down at my last visit at the end of July, so I have a bronchoscopy (a test where they scope your lungs to take a look) scheduled for later this month.  It might not be anything to worry about, but better safe than sorry.  Continue reading

Review: Kinsa Smart Ear Thermometer

I hadn’t done a review in awhile because I had my nice little arsenal of health stuff. Recently I had to make some changes.  One was prompted from getting a case of breakthrough oral thrush after a change in some medicines.  The other was because I finally made the leap to get an iphone 7plus since I was due for an upgrade.

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It’s Not Up To Those Who Are Hurting To Make YOU More Comfortable With THEIR Pain…

One of my volunteer friends died a few days ago.    A few mutual friends & I were talking not just about memories but also some really raw & visceral reactions from others in regards to our friend’s death being made public.

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Hi! Remember Me? I’m TSC!

I had another check up Thursday.  My lungs are still doing great,  but I wish I could say the same about my kidneys.

I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.

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A Tiny Blip…

Just before my last appointment, I found out I had A1 rejection.

This is very common in the first year of transplant & sometimes even happens to people in the hospital before discharge from their surgery.

It’s the most minimal rejection there is.

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