Last night, I celebrated my one year transplant anniversary. At that time in 2016, I was coming off the ventilator & breathing my first new breaths on my own.
I still remember those moments. Still remember crying when my surgeon showed me my first x-ray of my lungs.
A few months ago, my numbers were unexplainably down about 30 perecent.
After some steroid pushes & medication changes, things were still looking a bit funky & my numbers still hadn’t risen, so I needed another bronchoscopy (scope of my lungs).
For the past two years I’ve written a novel for National Novel Writing Month. It was a welcome distraction & radical departure from my life.
It also disciplined me to write 50,000 words in 30 days, which seemed really daunting at first but was actually doable.
I honestly forgot about this event until last night when I received a reminder email & updated agenda. My local hospital was having a one-day symposium at a nearby campus & a few months ago had asked me to be part of a roundtable about lung transplant. It finally hit me last night that we are at the end of the month.
A few days ago (on 9/2) I made my 9 month transplant anniversary.
A few weeks before that I had another bronchoscopy because my numbers were down.
All appears to be OK. No rejection. That’s good.
I’m hoping the fall brings better breathing numbers.
This is germane to not only events in a America right now, but also disparities in healthcare.
The past few weeks have been a bit tough. My breathing numbers were down at my last visit at the end of July, so I have a bronchoscopy (a test where they scope your lungs to take a look) scheduled for later this month. It might not be anything to worry about, but better safe than sorry. Continue reading