One of my volunteer friends died a few days ago. A few mutual friends & I were talking not just about memories but also some really raw & visceral reactions from others in regards to our friend’s death being made public.
Tag Archives: chronic life
A Tiny Blip…
Just before my last appointment, I found out I had A1 rejection.
This is very common in the first year of transplant & sometimes even happens to people in the hospital before discharge from their surgery.
It’s the most minimal rejection there is.
Life Moves Forward
I know I haven’t been updating much, but I’ve been making the rounds with my local doctors after I got back home from Philadelphia & also doing a few more tests.
iPhones & Healthcare…
I promised I would keep politics out of my blog.
I’ll hold to that outside of commenting on recent events about a “witty” sound byte made by a public official about healthcare.
To me, it’s been a nonpartisan issue for years. I can’t keep my mouth shut any longer.
Building A New Routine
This is my morning cocktail of current meds. Continue reading
Staying The Course
Yesterday I had a check-up with my nurse practitioner & doctor. I’m doing so well I won’t need a bronchoscopy (it’s a procedure where they go into your lungs & check for potential rejection/infections/other problems) for another 3 weeks or so.
Those of us post lung transplant know what a big deal that is. Continue reading
There’s No Place Like Home
I have been away awhile.
Since the last update I did have to go back to the hospital and was there most of January.
Turns out, the rest of my body didn’t like my first set of drugs (cocktail). I’ll spare all the gory details, but it WAS NOT fun.
Week 1 Post Transplant Rehab Complete
I completed my first week of post transplant rehab. I did a mile on the treadmill in about 25 minutes which I wasn’t sure I’d be moving at that great a clip so soon. So that was a pleasant surprise.
Transplanted!
Just a short entry for those who have been following my blog but haven’t heard. I received my double lung transplant on December 2nd. I was released from the hospital on December 13th.
I am quiet because I’m adjusting to new meds & new routines & I tire easily. I had my first outpatient rehab session Thursday the 15th to get tested & baselines for starting next week.
December’s Random (But Applicable) Blog Post
One of my favorite vices is coffee.
We have a Keurig in our house but we use the single serve cups with grounds & made that switch recently for a number of reasons.
