I know I haven’t been updating much, but I’ve been making the rounds with my local doctors after I got back home from Philadelphia & also doing a few more tests.
The last few months, I was having problems with my stomach so a few weekends ago I ended up getting a test to have that checked out.
Luckily, the results are back & we’ll officially review them soon but I was told not to worry about anything immediately or seriously wrong there.
I was relieved because that’s another trade-off that comes with lung transplant.
The surgery can impact the nerves in the stomach & cause new issues with digestion & emptying. This is an issue that several of my friends experience & it’s a hard one.
My steroid diabetes is better & I hope soon to be off insulin, but I’ve had to give myself very little insulin the last few months, which is encouraging. They’ve started lowering my levels of steroids & my immunosuppressant levels are finally consistent so that means less dose adjustments. Things are getting more towards a new “normal”.
I also managed to get past my first sinus infection last week. I’m still recovering my energy from that & all the crazy weather changes, but overall am doing well. I’m extremely grateful for that. I honestly wasn’t sure how my body would react. It was my first one since the transplant & I was scared when it hit.
Now, I feel a bit better knowing that things haven’t changed there as much post transplant. I’m good about staying on top of them & so is my local team of docs.
Because I can also breathe better, I think the antibiotics & treatments work better than they did before. Or at least it appears that way.
I’m starting to make the rounds occasionally to meet up with friends & go out in public, but I still have been laying a little low since there’s been some sicknesses going around my area. I always had hesitance even before transplant about being out a lot during cold & flu season. This still poses a real problem for me because of my low immunity.
I know after 6 or 8 months, I can consider those things & feel much better about involving myself. It’s just a personal choice I made after what I’ve been through since my transplant.
Emotionally too, I needed time to rest & adjust to being back home after so much time away. I know I wouldn’t have fun at those events because it would make me too nervous on several fronts.
I still wear my mask in the supermarkets on weekends & in waiting rooms. I also throw it on any time I am in proximity of someone I don’t know who appears sick.
My friends are really good about avoiding me if they are under the weather, which I appreciate that courtesy.
Some people have recently begun to ask when I will go back to work. The answer is I don’t know yet because the first year post transplant has a lot of potential for complications. The focus there needs to be on getting well & recovering before & above anything else.
I have to get cleared by my doctors as well before I can resume working in any capacity. But rest assured, with what I have to do, I keep plenty busy.
Luckily, I have had less bureaucratic tangles than I had last year. I’m hoping it stays that way because adapting to my routine & keeping up with all my doctor visits keeps me busy enough since I’m still on a schedule of appointments every 2-3 weeks.
I have started to think about things a bit more in advance at least to mull over & that’s a nice change.
Before & during my wait, I really struggled because I felt stuck, unable to move forward with any aspects of my life.
Now I can move forward, even in baby steps, & it feels good.