For the past few years it was pretty hard for me to see movies.
For one, I was worried about my oxygen tank running out (I had one leak in the theatre once) & it was hard to fit it in the seats even in the disabled seating area.
(Even when I had my portable concentrator I was self conscious about if it was making too much noise even when it was stowed under my seat.)
But now, post transplant I find I can go to a matinee & enjoy myself without having to worry too much about crowds & germs (I do carry my mask in case).
My attention is also better.
It’s a relief because I really do enjoy movies, documentaries especially.
Just before my last appointment, I found out I had A1 rejection.
This is very common in the first year of transplant & sometimes even happens to people in the hospital before discharge from their surgery.
It’s the most minimal rejection there is.
I know I haven’t been updating much, but I’ve been making the rounds with my local doctors after I got back home from Philadelphia & also doing a few more tests.
I think it’s fitting that my local oxygen supplier called me this morning to arrange for a pick-up of my oxygen on Rare Disease Day.
I have been away awhile.
Since the last update I did have to go back to the hospital and was there most of January.
Turns out, the rest of my body didn’t like my first set of drugs (cocktail). I’ll spare all the gory details, but it WAS NOT fun.
I was in the hospital almost a month having my anti -rejection drugs evaluated. The team seemed torn whether I was actually sick with a bug at first with the way it happened or if I was having reactions from the drug cocktail and that in turn caused the agony. I don’t think they found out for sure, except I tested clean for anything that was going around as far as bugs.
One of my favorite vices is coffee.
We have a Keurig in our house but we use the single serve cups with grounds & made that switch recently for a number of reasons.