I was just talking to some transplant recipients down here this weekend at the Gift of Life Family House where I stayed after this hospitalization & realized I hadn’t posted an update to my blog in awhile.
Last night, I celebrated my one year transplant anniversary. At that time in 2016, I was coming off the ventilator & breathing my first new breaths on my own.
I still remember those moments. Still remember crying when my surgeon showed me my first x-ray of my lungs.
I posted this to another social account. But I felt it was worth sharing here:
I’ve made a tough call. I’m not abandoning my play, just setting it aside for now.
A few months ago, my numbers were unexplainably down about 30 perecent.
After some steroid pushes & medication changes, things were still looking a bit funky & my numbers still hadn’t risen, so I needed another bronchoscopy (scope of my lungs).
A few days ago (on 9/2) I made my 9 month transplant anniversary.
A few weeks before that I had another bronchoscopy because my numbers were down.
All appears to be OK. No rejection. That’s good.
I’m hoping the fall brings better breathing numbers.