Journey To Now

I honestly forgot about this event until last night when I received a reminder email & updated agenda.  My local hospital was having a one-day symposium at a nearby campus & a few months ago had asked me to be part of a roundtable about lung transplant.   It finally hit me last night that we are at the end of the month.

Continue reading

Advertisements

Week 1 Post Transplant Rehab Complete

I completed my first week of post transplant rehab.   I did a mile on the treadmill in about 25 minutes which I wasn’t sure I’d be moving at that great a clip so soon. So that was a pleasant surprise.

Continue reading

REBLOG: When Delivery Is Not A Luxury

I think Esme has an excellent point with this blog post.

I am extremely fortunate in that I have lived with friends for several years & when I’ve been sick or not feeling well they’ve always been the first to pitch in to help.

Continue reading

REBLOG: Dear Pennsylvania Governor Tom Wolf, Can We Talk Medical Marijuana From A Chronically Ill Person’s Perspective?

This is still a hot topic. I know I discussed this awhile ago in a past post. I discussed it then more in the context of how I also have some friends here in the PA area that worked diligently for a few years to get the PA Bill passed.

That said, I think Brittney’s post (Brittany is one of my fellow bloggers from the Chronic Illness Blogger Network) is great & brings up additional food for thought.

I think she makes some excellent points.

Continue reading

From NHS Trust: Transplant Patient Comes Face To Face With His Old Heart

This article really struck a cord as I read it.   It reminds me of the reasons why I filled out a consent form to donate my old lungs to LAM research & also at least get tested to see if any of my other organs or tissues could be donated to someone who needed them.

Continue reading

Fear of the Unknown

Recently, I found another LAM sister came to my center to dual list after essentially getting the run around from another center in NY.  I refuse to name this center but have often butted heads with on how they manage women with my disease.

Continue reading