I like this video too.
It really resonates with me & how I have to budget my own energy.
Tag Archives: spoonies
Review: Pill Drill
It’s been a moment since I’ve done a review. This is partially due to not receiving some of the things I’ve backed just yet.
Still, I came across something fascinating & that I was lucky enough to receive a discount on the package in exchange for doing some user testing & exchanging feedback. I was so happy I did.
REBLOG: When Delivery Is Not A Luxury
I think Esme has an excellent point with this blog post.
I am extremely fortunate in that I have lived with friends for several years & when I’ve been sick or not feeling well they’ve always been the first to pitch in to help.
The Night before NaNoWriMo…
Today is Halloween. Tomorrow I will have been listed for 8 months. Next Monday, I have my next check-up.
Then on the 9th, I’ll be in Baltimore to discuss dual listing with John Hopkins.
REBLOG: Dear Pennsylvania Governor Tom Wolf, Can We Talk Medical Marijuana From A Chronically Ill Person’s Perspective?
This is still a hot topic. I know I discussed this awhile ago in a past post. I discussed it then more in the context of how I also have some friends here in the PA area that worked diligently for a few years to get the PA Bill passed.
That said, I think Brittney’s post (Brittany is one of my fellow bloggers from the Chronic Illness Blogger Network) is great & brings up additional food for thought.
I think she makes some excellent points.
REBLOG From Counting My Spoons: Why Don’t We Ask For Help?
This reblog comes someone I deeply respect & admire.
She runs our Chronic Illness Blogger Network & sometimes gets us some things to review or a little something in return for a sponsored post.
She also has gotten us into an organized group of our own to toss around ideas. I really enjoy the people I’ve met as a part of it.
On top of this, she cares deeply about the other bloggers she knows & can relate to the struggles of chronic illness.
Julie Ryan, thank you for reaching out to me & asking me to join the Chronic Illness Blogger Network. I have learned so much & have had my creativity challenged which is always a good thing.
Julie’s blog is really excellent. It’s called Counting my Spoons. This month I’ll be featuring some of Julie’s content & posts I’ve found extremely insightful & helpful.
I hope you will too.
Here’s the first:
This was especially applicable for me to read because I’ve always struggled with this. I’m almost too stubborn & self sufficient at times, when I really shouldn’t be. But I really love what Julie explored in this post. So much of it resonated with me.
I bet it will with you, too.
(Photo credit: Photo taken from Julie’s “About Me” page.)
ALT SHIFT X: Lung Transplant Video
I really like this video.
It’s a good quick primer of a lung transplant.
It also talks about chronic rejection. It does all of this in layman’s terms.
I think it helps those who may be supporting people going through a lung transplant understand this whole journey better without being too technical or with a slew of medical jargonese.
From Everyday Feminism: 6 Ways Your Social Justice Activism Might Be Ableist
One of my transplant friends had this article posted to her social media page.
I actually really like it & think it makes so much sense. It also explains the damage that ableism does in really succinct & practical ways.
It’s by no means a complete list, but certainly is a relatable one.
Definitely share-worthy.
Article: Watch Touching Heart Transplant Story About LSU, Auburn Fans
I’m not one for football.
I never have been (though I have tried to be at times), but I couldn’t resist sharing this unique story.
Especially because it involves babies, who are the tiniest yet fiercest warriors I know at times. Their resilience always humbles me.
From NHS Trust: Transplant Patient Comes Face To Face With His Old Heart
This article really struck a cord as I read it. It reminds me of the reasons why I filled out a consent form to donate my old lungs to LAM research & also at least get tested to see if any of my other organs or tissues could be donated to someone who needed them.
AS I LIVE & BREATHE 