I came across this post & had to add it to my list of great content to share. It mimics how I’ve felt for several years, even prior to the transplant journey entering my life.
When I suddenly had to stop working in July 2015, it was hard. I wasn’t just scared about filing disability & whether I’d actually have to jump through hoops to get approved, but my last safety net felt ripped out from underneath me.
In the past, no matter how sick I got I was somehow able at some point to keep working & return to work. It was my bench mark of normal. I often felt, well it can’t be that bad because I’m still working. I can’t be that sick.
So that’s just one small instance of how this post resonated with me.
It’s been hard this past year to face my doctors & not downplay how I’m feeling because I had gotten so used to doing so for the sake of other people. Yet, now I find myself trying to be more honest, at least with friends & family. This blog has helped with that too.
Ultimately, I feel it’s healthier this way for me in dealing with my own situation, but I understand all too well both sides of the coin.
Some issues are universal regardless of official diagnosis. Disability & illness (whether visible or invisible) can be hard to cope with some days.
There are days you just get tired of trying to explain it to others…