I like this video too.
It really resonates with me & how I have to budget my own energy.
Tag Archives: spoonie
REBLOG: When Delivery Is Not A Luxury
I think Esme has an excellent point with this blog post.
I am extremely fortunate in that I have lived with friends for several years & when I’ve been sick or not feeling well they’ve always been the first to pitch in to help.
The Night before NaNoWriMo…
Today is Halloween. Tomorrow I will have been listed for 8 months. Next Monday, I have my next check-up.
Then on the 9th, I’ll be in Baltimore to discuss dual listing with John Hopkins.
REBLOG: Dear Pennsylvania Governor Tom Wolf, Can We Talk Medical Marijuana From A Chronically Ill Person’s Perspective?
This is still a hot topic. I know I discussed this awhile ago in a past post. I discussed it then more in the context of how I also have some friends here in the PA area that worked diligently for a few years to get the PA Bill passed.
That said, I think Brittney’s post (Brittany is one of my fellow bloggers from the Chronic Illness Blogger Network) is great & brings up additional food for thought.
I think she makes some excellent points.
REBLOG From Counting My Spoons: Why Don’t We Ask For Help?
This reblog comes someone I deeply respect & admire.
She runs our Chronic Illness Blogger Network & sometimes gets us some things to review or a little something in return for a sponsored post.
She also has gotten us into an organized group of our own to toss around ideas. I really enjoy the people I’ve met as a part of it.
On top of this, she cares deeply about the other bloggers she knows & can relate to the struggles of chronic illness.
Julie Ryan, thank you for reaching out to me & asking me to join the Chronic Illness Blogger Network. I have learned so much & have had my creativity challenged which is always a good thing.
Julie’s blog is really excellent. It’s called Counting my Spoons. This month I’ll be featuring some of Julie’s content & posts I’ve found extremely insightful & helpful.
I hope you will too.
Here’s the first:
This was especially applicable for me to read because I’ve always struggled with this. I’m almost too stubborn & self sufficient at times, when I really shouldn’t be. But I really love what Julie explored in this post. So much of it resonated with me.
I bet it will with you, too.
(Photo credit: Photo taken from Julie’s “About Me” page.)
Fear of the Unknown
Recently, I found another LAM sister came to my center to dual list after essentially getting the run around from another center in NY. I refuse to name this center but have often butted heads with on how they manage women with my disease.
Another Random (Yet Applicable) Post…
I did have to say I chuckled as I read this. I do know it to be true.
Review: A Love Worth Giving
I’ve watched a good number of transplant documentaries by now. In fact, I’ve become a little obsessed with documentaries as whole at points.
REBLOG: But You Don’t Look Sick?! – A Letter On Why I Hide My Illness
I came across this post & had to add it to my list of great content to share. It mimics how I’ve felt for several years, even prior to the transplant journey entering my life.
REBLOG: #Spoonie Yoga Crew
I love this idea, & have often felt the same way. As my lung disease has progressed, certain positions have become harder to do & others send me spiking or cause intense pain.
AS I LIVE & BREATHE 