As promised, I have another great share from Erin Gilmer.  (You’ll remember last month I shared a post from Erin’s blog, Health As a Human Right.)

She graciously gave me permission to re-share. It was published to her blog back in May. I know there’s been times where many of us can relate to what Erin shares below.

It speaks volumes about the pressures all of us with chronic illness, rare disease & disabilities face when trying to manage our own care proactively in a less than ideal system.

What It’s Like