The HOPE Act was a big move in reversing the stance of disqualifying donors & patients alike because of HIV Status. The passage of this act in 2013, led to changes & developing safeguards for transplants in the HIV population.
“Before this act at least 500-600 lives were lost per year because both donors & patients were disqualified from organ transplantation. ” (A statistic taken from this article.)
Transplant as most of us know is not a cure, but a life extension for several diseases.
Not everyone who wants a transplant qualifies, & not everyone who qualifies receives one.
But I am very relieved & cheering this news for giving hope to those who need it, disease status aside. I found out about it yesterday but was still happy to see it circulating in my news feeds today.
I’ve been in awe & impressed in what the HIV community has done to thwart a shortened life expectancy & challenge stigmas, fears, & stereotypes, over time after being subjected to so much game playing at the hands of several entities including politics, pharma & sometimes medicine itself.
This is a victory on several fronts, not just for transplantation as a whole.
This news is huge. It’s news that all of us can be grateful for.
I’m sure too it does the donor families credit to know that their loved ones wishes can be fulfilled within their own community now as well.
That’s an equally important need & legacy to leave.