Just before my last appointment, I found out I had A1 rejection.
This is very common in the first year of transplant & sometimes even happens to people in the hospital before discharge from their surgery.
It’s the most minimal rejection there is.
I know I haven’t been updating much, but I’ve been making the rounds with my local doctors after I got back home from Philadelphia & also doing a few more tests.
I promised I would keep politics out of my blog.
I’ll hold to that outside of commenting on recent events about a “witty” sound byte made by a public official about healthcare.
To me, it’s been a nonpartisan issue for years. I can’t keep my mouth shut any longer.
This is my morning cocktail of current meds. Continue reading
Yesterday I had a check-up with my nurse practitioner & doctor. I’m doing so well I won’t need a bronchoscopy (it’s a procedure where they go into your lungs & check for potential rejection/infections/other problems) for another 3 weeks or so.
Those of us post lung transplant know what a big deal that is. Continue reading
I think it’s fitting that my local oxygen supplier called me this morning to arrange for a pick-up of my oxygen on Rare Disease Day.
One of the things that happened after my lung transplant was that I became diabetic from the high amount of steroids they give us.
I have been away awhile.
Since the last update I did have to go back to the hospital and was there most of January.
Turns out, the rest of my body didn’t like my first set of drugs (cocktail). I’ll spare all the gory details, but it WAS NOT fun.
I was in the hospital almost a month having my anti -rejection drugs evaluated. The team seemed torn whether I was actually sick with a bug at first with the way it happened or if I was having reactions from the drug cocktail and that in turn caused the agony. I don’t think they found out for sure, except I tested clean for anything that was going around as far as bugs.
I thought these holidays would take me out. I had 3 days in a row at the hospital this week & will next week. But I did ok. I can do a bit more each day.