I was notified a little over a month ago that I was selected for the first-ever American Society of Transplantation (AST) Patient Summit in October.
Again, a rare occurrence to get political on my blog. Because whether people agree with me or not, this is a matter of life & death. The AHCA/BCRA must not pass!
I do not joke about death. Yet, after asking nicely with no movement & amendments sure to get worse, I know no other way to get through.
The 13 authors don’t want to be called heartless or murderers then don’t pass this cruel bill.
Some may say it’s extreme, but I’m tired of playing nice & being ignored, & getting canned responses about how I must take more personal responsibility when I’ve taken plenty.
I’ll be sending this mock obituary through to my delegation tonight because I think they need to see the consequences of a “Yes” Vote:
I had another check up Thursday. My lungs are still doing great, but I wish I could say the same about my kidneys.
I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.
Today marks the start of the first ever LAM Awareness Month. June first was always LAM Awareness Day for several years prior. This year, it became an official awareness month.
Yesterday was an emotional day for me. I turned 40. Continue reading
I was down for a check-in yesterday with my Diabetes Nurse Practitioner. It was good news. Continue reading
Life with transplant is challenging no matter how much someone tries to prepare themselves for it.
I’m a little over 4 months post transplant now, & while I am definitely doing well (knock wood) not every day is as easy at it may appear.