I promised to be honest when I started my blog to not just report all the “good stuff” all the time, because like any path, the transplant path has fits & starts, blips, & snags. Mine, overall despite being annoying, have been small. Yet, it’s frustrating at times.
Tag Archives: transplant
2017 Transplant Patient Summit
I was notified a little over a month ago that I was selected for the first-ever American Society of Transplantation (AST) Patient Summit in October.
Me Without Healthcare….
Again, a rare occurrence to get political on my blog. Because whether people agree with me or not, this is a matter of life & death. The AHCA/BCRA must not pass!
I do not joke about death. Yet, after asking nicely with no movement & amendments sure to get worse, I know no other way to get through.
The 13 authors don’t want to be called heartless or murderers then don’t pass this cruel bill.
Some may say it’s extreme, but I’m tired of playing nice & being ignored, & getting canned responses about how I must take more personal responsibility when I’ve taken plenty.
I’ll be sending this mock obituary through to my delegation tonight because I think they need to see the consequences of a “Yes” Vote:
Draft of FDA Testimony
Representing the TS Alliance & The LAM Foundation both when it counts in research & behind the scenes has been something I have championed for a very long time as my health has allowed.
“I Am Somebody, But Part Of Me Is Somebody Else.”
Yesterday was an emotional day for me. I turned 40. Continue reading
The Death of Compassion
I was down for a check-in yesterday with my Diabetes Nurse Practitioner. It was good news. Continue reading
65 Percent –New Transplant Doc
I found out about this movie much too late to back their crowdfunding campaign, but even then I was intrigued.
I found The Wave Set on social media & reached out to them wondering when the film would be released.
4 Months Down…
Life with transplant is challenging no matter how much someone tries to prepare themselves for it.
I’m a little over 4 months post transplant now, & while I am definitely doing well (knock wood) not every day is as easy at it may appear.
Life Moves Forward
I know I haven’t been updating much, but I’ve been making the rounds with my local doctors after I got back home from Philadelphia & also doing a few more tests.
iPhones & Healthcare…
I promised I would keep politics out of my blog.
I’ll hold to that outside of commenting on recent events about a “witty” sound byte made by a public official about healthcare.
To me, it’s been a nonpartisan issue for years. I can’t keep my mouth shut any longer.
AS I LIVE & BREATHE 