Me Without Healthcare….

Again, a rare occurrence to get political on my blog.  Because whether people agree with me or not, this is a matter of life & death.  The AHCA/BCRA must not pass!

I do not joke about death.  Yet, after asking nicely with no movement & amendments sure to get worse, I know no other way to get through.

The 13 authors don’t want to be called heartless or murderers then don’t pass this cruel bill.

Some may say it’s extreme, but I’m tired of playing nice & being ignored, & getting canned responses about how I must take more personal responsibility when I’ve taken plenty.

I’ll be sending this mock obituary through to my delegation tonight because I think they need to see the consequences of a “Yes” Vote:

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Draft of FDA Testimony

Representing the TS Alliance & The LAM Foundation both when it counts in research & behind the scenes has been something I have championed for a very long time as my health has allowed.

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65 Percent –New Transplant Doc

I found out about this movie much too late to back their crowdfunding campaign, but even then I was intrigued.

I found The Wave Set on social media & reached out to them wondering when the film would be released.

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4 Months Down…

Life with transplant is challenging no matter how much someone tries to prepare themselves for it.

I’m a little over 4 months post transplant now, & while I am definitely doing well (knock wood) not every day is as easy at it may appear.

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iPhones & Healthcare…

I promised I would keep politics out of my blog.

I’ll hold to that outside of commenting on recent events about a “witty” sound byte made by a public official about healthcare.

To me, it’s been a nonpartisan issue for years.   I can’t keep my mouth shut any longer.

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Staying The Course

Yesterday I had a check-up with my nurse practitioner & doctor.  I’m doing so well I won’t need a bronchoscopy (it’s a procedure where they go into your lungs & check for potential rejection/infections/other problems) for another 3 weeks or so.

Those of us post lung transplant know what a big deal that is.  Continue reading