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As I live And Breathe

As I live And Breathe

A Woman's Journey With Rare Disease

Tag: rare disease

Posted on 09/19/201608/28/2016

REBLOG: What’s The Use of Health Data…

Posted on 09/17/201609/17/2016

Sometimes Forgetting Isn’t Bad

Posted on 09/16/201609/14/2016

REBLOG: But You Don’t Look Sick?! – A Letter On Why I Hide My Illness

Posted on 09/14/201609/17/2016

(Archived) Webinar: Screening & Management of LAM in TSC: What’s New & What’s Needed

Posted on 09/12/201609/12/2016

Distance, Delays & Denial: The VA Organ Transplant System

Posted on 09/10/201608/28/2016

REBLOG: #Spoonie Yoga Crew

Posted on 09/06/2016

No Dice

Posted on 09/05/201608/26/2016

Press Release: Penn Medicine Performs 1000th Lung Transplant

Posted on 09/03/201609/04/2016

Learning To Live With Frustration…

Posted on 09/02/201608/15/2016

REBLOG: Fight For Yourself!

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