Article: ‘Gift Certificate’ Concept Enables Kidney Donation, Transplant When Needed

This innovative program by UCLA is a step in the right direction for organs that can be donated through a living donor.

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Press Release: Apple & Donate Life America Bring National Organ Donor Registration to iPhone

I saw this press release floating around recently & I was encouraged.  I was happy to see Apple taking strides to partner with Donate Life America to offer yet another way for people to register as organ donors.

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Article: Man Needs Another Miracle 20 Years After Getting New Heart

Frank Bodino’s story is incredible.  Read it for yourself here.

Yet, what’s even more incredible is how he’s being re-listed through a novel program after being turned down by 4 other centers even with his relentless dedication to taking care of his donor heart.

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Action Needed: Insurers Take Aim & Try To End Charitable Financial Assistance For CKD & Dialysis Patients

I don’t really circulate petitions unless I feel they fight a real credible threat to someone else.

When I say I’m in recovery from my job, I’m only half joking about that.

My employer & the self-funded insurance market was a hell of a lot more fair & equitable than most of the major players in the fully insured health insurance sector that most of us are used to dealing with.  There are things I miss about working in it, but definitely others I don’t.

Because we had to report results & answers to multiple entities (employers, insurance network partners, subscribers alike) & had to account for everything, there was more transparency than what most employers get from standard (or fully insured plans).

I see this even my own company insurance.

I learned how the health insurance market works overall over the past 3 or more years (still continue to) & I’m glad I did.

I’ve been in a better position to successfully navigate the bureaucratic end of transplant as it comes up than I would have been without that experience.

There are many things that I don’t agree with but understand about the industry itself.

In fairness, I also didn’t fully grasp what happened behind the scenes (or otherwise) until I was there doing the daily grind & saw it in action myself.

For me, it’s conflicting at times.

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Powerful Organ Donation Video

I don’t cry easily, but this video that my cousin passed along to me via Facebook yesterday really got the water works going.

I figured it was worth a share… Continue reading

Transplant Medicines Being Threatened by Medicare

This lead came yesterday courtesy of my friend, DAP, a heart transplant recipient & fellow blogger.

Please read the latest e-news from the TRIO Action Center.  They will then provide a link to a letter you can tailor & send in support of fighting Medicare on limiting transplant drugs & a few others that are now under protected status.

TRIO stands for Transplant Recipients International Organization. They are a nonprofit support group for the transplant community whose focus is on advocacy, awareness, support & education.

I do not qualify for Medicare as of yet, but I am concerned about this because private insurance often takes cues as to what it will or won’t cover from Medicaid & Medicare.

Blocking access to transplant drugs could prove lethal, especially anti-rejection medications. I’m not being dramatic when I say that.

I hope others will care enough to send their own letters in to contest this move for those they know who might need a transplant either now or in the future. Or to support those they know who have had transplant. 

Thanks DAP for the alert on this. Hoping by posting this today we keep the pressure up on the issue & raise awareness.

 

Transplant Hero App: A Transplant Surgeon Gives Back

I found a great free app I’m hoping to try out after my next appointment. If not then, I know I will definitely use it post-transplant.

I thought it would be great to pass this information along to others who have trouble managing their transplant medications or haven’t found a medication management app that they like yet.

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