I signed on to be a beta tester for this device a few weeks ago, maybe it’s a month or more now. (Things have been kind of a whirlwind). I was excited when I received the package with the Myspiroo because it’s a smart phone spirometer, which I have been hoping for even before I was transplanted.
I hadn’t done a review in awhile because I had my nice little arsenal of health stuff. Recently I had to make some changes. One was prompted from getting a case of breakthrough oral thrush after a change in some medicines. The other was because I finally made the leap to get an iphone 7plus since I was due for an upgrade.
Yesterday, I didn’t do much. About the time I was getting ready to go out in the afternoon & then play a little Fallout 4, I had another pain flare hit. This time it wasn’t just the pain & stiffness, it was also the return of pain in my kidney area.
This was something I hadn’t been subject to since 2010. I was not happy to see it return, but not surprised either since it’s almost been a month now I’ve been off Rapamune. I knew it might sooner or later.
As I was fighting that, I was still trying to be somewhat productive. I was reading articles & watching videos to do background research for the latest Sickadilly chat today on superbugs.
I came across this online magazine on futurism as I was almost ready to call it a night.
(Tangents aren’t always a bad thing). Continue reading
I am very pro-research on general principle. The exception lies with “studies” (like this example) which measure only specific short-term endpoints that are inherently hard to measure & quantify.
Things like clinical & economic benefit & those associated “outcomes”.
Everyone has a different definition of “success” in these cases. Also just because it doesn’t show something concrete in dollars & cents or in data points doesn’t mean it doesn’t have value.
Normally, I might overlook something like this article, but since I found it through HelpHOPELive (who helps manage my transplant fund), I decided to take a look (it came through their Twitter feed). I’m glad I did, because I know that even though this is not “prime time” yet, it makes me hopeful. The reason for that is, while I love what oxygen does for me, I loathe it because it is such a “shell game” & pain point both financially & practically. I can’t stand the “politics” & “business” coming in between what people really need when they need it. It’s a true headache & hassle to stay mobile as needs change & usage of this vital life gas increases with advancement of illness.