Important Article: Misinformation From Brain Death Stories Impacts Organ Donation.

This article may just be for journalism nerds like me…but I’m glad Donate Life California passed this along.

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Article: Man Needs Another Miracle 20 Years After Getting New Heart

Frank Bodino’s story is incredible.  Read it for yourself here.

Yet, what’s even more incredible is how he’s being re-listed through a novel program after being turned down by 4 other centers even with his relentless dedication to taking care of his donor heart.

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Response to TYT: Teen Denied Heart Transplant Over Bad Grades

While I love the Young Turks, I’m torn on this video.  Both Cenk & Ana seem to say they understand the transplant process but they oversimplify the decisions that go into listing & selecting candidates for transplant, whether they are adults, or in this case, children.

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Lauren’s Law (In NY) – Will It Become Permanent?

There were other reasons than my differing with the way Columbia manages their transplant program & candidates care that makes me relieved that I moved out of New York City when I did.
The New York State donation rate is another.

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Response To: The Search For A ‘Perfect’ Organ Cost My Wife Her Life

This article is brutally honest.  I understand much of it & disagree with some minor points overall. I do understand & agree where Brian is coming from.  It’s a hard read.  Kicks up a lot of emotion. Continue reading

Someone Needs To Get Their House In Order: A Follow-Up

One of my friends from Twitter passed me this link this morning.  I do not cry easily but after I read it I was in tears because I was so upset for Che Duvall  (& his family) whose trust & care was violated by this center.

Transplant is hard enough without dying from preventable risks like this & suffering needlessly for months. His center did wrong by him (& by the three other patients whose trust was so flagrantly violated).

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Interesting But Alarming News

This was a difficult alert to read.   However, I commend my center for looking into such issues & challenging transplant centers as a whole to do better by their patients.

While this was a liver transplant based study, I am sure livers are not the only organ that are affected by such practices.

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Response: Health Affairs Blog Post: It’s Time For Fairness In Organ Distribution

I don’t know how to feel about this blog post to be quite honest.  I know that the allocation & final rules vary organ to organ, so I can only speak to lungs, not liver.  I wish though, that the Health Affairs Blog would have made that distinction in the title of this post because this clearly only addresses livers. Not other organs in contrast or comparison, so it’s not a wholly balanced discussion.

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New Forms of Transplant Raise New Questions

I know I name drop Arthur Caplan’s name quite a bit. Yet, he really nails many ethical issues on the head.   I’ve been reading quite a bit on transplant advances & new forms of transplants being done lately.  It’s exciting to me on one hand, on the other it deeply conflicts me…

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