I think it’s fitting that my local oxygen supplier called me this morning to arrange for a pick-up of my oxygen on Rare Disease Day.
Now that I’m back to using oxygen tanks/bottles, I have to plan things a bit more carefully.
I’m lucky that I don’t have to rely solely on e-tanks (the largest size tank), for short trips to the store, going out with friends, & walking around I can get by with a smaller size tank called a D tank if I choose.
The problem is it’s still a bit heavy to be “backpacked” (like I used to do with my M6 bottles when I first went on oxygen).
Yet, I still found a solution (after searching online) because I hate the sling bags the suppliers provide as a carrier for these tanks.
Yeah. That’s what I thought. Few if any takers on that one. My snark is back because I was hoping that this rough week would be better. Well, it is OK for now, because it finally passed but I had some nice drama this morning that I hadn’t anticipated.
I had a bit of an annoying run-in recently at my community center. I was checking in & since there were a few people in line, I had moved to the farther counter to do so. This older person comes right up behind me, with no regard to space, almost knocking over my oxygen machine to check in as I was trying to. I kind of muttered “personal space much” as I walked away to hang up my coat. He proceeded to follow closely but I think took a hint for a minute since he was on the other end of the coat rack. I then walked into the equipment room.
Normally, I might overlook something like this article, but since I found it through HelpHOPELive (who helps manage my transplant fund), I decided to take a look (it came through their Twitter feed). I’m glad I did, because I know that even though this is not “prime time” yet, it makes me hopeful. The reason for that is, while I love what oxygen does for me, I loathe it because it is such a “shell game” & pain point both financially & practically. I can’t stand the “politics” & “business” coming in between what people really need when they need it. It’s a true headache & hassle to stay mobile as needs change & usage of this vital life gas increases with advancement of illness.
This is the last time I rag on Dr. Thomas Lowder, my exercise study investigator (who uses an old flip phone), for being “old school” or a “throwback”. The words came back to bite me recently. Luckily, he’s a good sport about it.