Food For Thought: Does Telling The Truth About Pain Mean You’re Being Too Negative?

I came across this post by Megan Devine in Tim Lawrence’s Twitter feed & it really spoke to me.  Partially because it’s something I’ve struggled with in sharing my own reality inside the doctor’s office & outside of it from time to time.  I know I posted about Tim’s great post on platitudes, but this piece from Megan also had me thinking when I came across it last night.

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What If I Was Offered A Former Smoker’s Lungs?

In the early days of my blog, my post, Deeper Questions, had me evaluating how I felt concerning being transplanted with “marginal” lungs that had been rehabilitated.  I saw that someone from one of my transplant support groups had posted this item from my transplant center’s website & it gave me thoughts along similar lines. Something I had not considered before.  How would I feel about receiving lungs from a (former) smoker?

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EPIC FAILURES In Navigating Healthcare & Insurance Systems

Even though it was written by a doctor, this post still rang true for me.  I took several of these calls over time as a customer service rep, & I would try to help people sort out the messes.  In fact, even after my promotion, this most likely was what I would be doing yet today (if I was still at work and not on disability). I’d be helping both employer groups & members.  I’m still in “recovery” mode…because part of me misses helping people, but part of me doesn’t miss troubleshooting messes like this in the slightest, especially when it came to dealing directly with specialty pharmacy issues…

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CRISPR-Based Knockouts: A More Effective Animal Model In TSC Research?

The genetics & basic science research of tuberous sclerosis complex (TSC) can be hard to follow at points, even for me.  I do find it highly fascinating even if it’s harder for me to wrap my head around than the clinical research.

I remember sitting in a conference listening to David Kwiatkowski, MD, PhD give a presentation at a conference once & being in awe with what he was accomplishing with fruit flies (drosophila) at the time in the research space.  This was probably at least 10 years ago now (if not more).  It took me a while though to wrap my head around the genetics for myself in a relatable way. Don’t ask me to break down to anyone, that is one area I still struggle.

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New Forms of Transplant Raise New Questions

I know I name drop Arthur Caplan’s name quite a bit. Yet, he really nails many ethical issues on the head.   I’ve been reading quite a bit on transplant advances & new forms of transplants being done lately.  It’s exciting to me on one hand, on the other it deeply conflicts me…

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Transplant Advances: Simultaneous Stem Cell/Kidney Transplant – Can The Combination Negate Need For Immunosuppressants?

I was hesitant to share this particular news before because I couldn’t find any real sources to verify what phase of clinical trial it was in.  But I find this news highly promising. Yet, I’m trying not to get my hopes up too soon.

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Transplant Advances: New Life For Pig-To-Human Transplants

I know “science-y” stuff like this Nature medicine news feature is a hard grasp for some people.  But allow me to try & break down why articles like these are important from a practical standpoint.

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