I’ll be posting a bit more often this month because I want to support the first WorldWide LAM Awareness Month.
To see the exciting possibilities of 3D printing in medicine, check out this cool slideshow from the Cleveland Clinic:
I have had LAM for over 12 years now. I can say I love my lungs but hate what this disease does to them.
For awhile, that distinction was hard to draw. I resented my lung disease as much or more as I resented my lungs not being able to keep up. But that was errant thinking. The fact that they lasted over 12 years & that they keep fighting now even as I wait for new lungs amazes me. I didn’t give them enough credit for their resilience & ability to keep going no matter how tough & intense the fight.
I know the women in this video. They are but a few of the many friends I have made on my journey with this disease.
After I was made aware of this finding & commented on it, Dr. Chada & Dr. D’Armiento graciously gave of their time to break down the science for me as well as answer a few questions I had posed with a series of emails & a few calls.
This is the first half of the questions I posed to them after reading through the research paper, picking it apart, talking with a few friends & leaders to connect a few dots, & then comparing my prior learnings in research to date to connect the dots to this finding.
I hope that the introduction I posted yesterday was helpful in simplifying some of the terminology.
For ease, I tried to group similar questions & responses together. I had at least 16 questions that came out of this study. So the first half of those are below. The rest will follow tomorrow.
I woke up to a pleasant surprise this morning. I have to thank my tweetchat & Twitter friend, Joe Babaian, for passing along this lead.
This release is very preliminary. That said, I found it interesting as I have always felt (as have others) that it wasn’t just the MTOR pathway alone that was at work in both of my diseases (LAM & TSC). This seems to confirm that theory.