Author: Nikki

I've been a rare disease advocate for quite some time. I have LAM (lymphangioleiomyomatosis) and TSC (tuberous sclerosis complex). My LAM is severe enough that I needed a lung transplant. Now my TSC has progressed to the point where I now need a kidney. I maintain this blog to raise awareness of my diseases, rare diseases, transplant, organ donation & discuss other important healthcare topics and life with chronic illness.