All Good Things…Well, You Know…

I haven’t been updating this because I’ve had my hands full with grad school, life, and medical appointments.

I will be keeping this blog up for archive purposes because I think it might be useful for some people in the many communities I’m a part of but admittedly, I’m burnt out of maintaining it.

Perhaps later that may change, which is another reason I’ll keep it up, but I’m going to take a break from blogging & shift gears to other things for awhile.

Thank you for the support since I started this.  I truly appreciate it.

 

 

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Nikki

I've been a rare disease advocate for quite some time. I have LAM (lymphangioleiomyomatosis) and TSC (tuberous sclerosis complex). My LAM is severe enough that I needed a lung transplant. Now my TSC has progressed to the point where I now need a kidney. I maintain this blog to raise awareness of my diseases, rare diseases, transplant, organ donation & discuss other important healthcare topics and life with chronic illness.

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