Now that I’m back to using oxygen tanks/bottles, I have to plan things a bit more carefully.
I’m lucky that I don’t have to rely solely on e-tanks (the largest size tank), for short trips to the store, going out with friends, & walking around I can get by with a smaller size tank called a D tank if I choose.
The problem is it’s still a bit heavy to be “backpacked” (like I used to do with my M6 bottles when I first went on oxygen).
Yet, I still found a solution (after searching online) because I hate the sling bags the suppliers provide as a carrier for these tanks.
I did a test run of an active day yesterday. I went out to the community center to try out my new oxygen system.
Today was a big day for me. I changed oxygen suppliers again & got calibrated & fitted for my new oxygen system. It’s called a Niov. It’s basically a portable ventilation system.
I know that sounds intimidating, but it’s not.
It’s not the prettiest looking thing but it works so efficiently that I don’t mind it.
Yesterday was exhausting too but it was for a good reason. I was able to spend most of the afternoon after the doctor’s appointment at least getting the ball rolling on what I need.
I guess politely laying down the law as I did on Friday must have gotten my oxygen company to move much more quickly.
I received a call this morning. I was dreading it so I let it go to voicemail because I was just getting moving & needed a minute to take a breath to be calm.
Yeah. That’s what I thought. Few if any takers on that one. My snark is back because I was hoping that this rough week would be better. Well, it is OK for now, because it finally passed but I had some nice drama this morning that I hadn’t anticipated.
Normally, I might overlook something like this article, but since I found it through HelpHOPELive (who helps manage my transplant fund), I decided to take a look (it came through their Twitter feed). I’m glad I did, because I know that even though this is not “prime time” yet, it makes me hopeful. The reason for that is, while I love what oxygen does for me, I loathe it because it is such a “shell game” & pain point both financially & practically. I can’t stand the “politics” & “business” coming in between what people really need when they need it. It’s a true headache & hassle to stay mobile as needs change & usage of this vital life gas increases with advancement of illness.
Graduations & retirements are usually cause for celebration. Continue reading