Tag Archives: supplemental oxygen

07.05.16
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Life-Hacking Oxygen (Part 4)

Now that I’m back to using oxygen tanks/bottles,  I have to plan things a bit more carefully.

I’m lucky that I don’t have to rely solely on e-tanks (the largest size tank), for short trips to the store, going out with friends, & walking around I can get by with a smaller size tank called a D tank if I choose.

The problem is it’s still a bit heavy to be “backpacked” (like I used to do with my M6 bottles when I first went on oxygen).

Yet, I still found a solution (after searching online) because I hate the sling bags the suppliers provide as a carrier for these tanks.

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05.17.16
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Test Driving The Niov System

Today was a big day for me.  I changed oxygen suppliers again & got calibrated & fitted for my new oxygen system.  It’s called a Niov.  It’s basically a portable ventilation system.

I know that sounds intimidating, but it’s not.

It’s not the prettiest looking thing but it works so efficiently that I don’t mind it.

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05.13.16
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Fingers Crossed…Progress

Yesterday was exhausting too but it was for a good reason.  I was able to spend most of the afternoon after the doctor’s appointment at least getting the ball rolling on what I need.

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04.18.16
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Squeaky Wheels Do Get Greased… Eventually

I guess politely laying down the law as I did on Friday must have gotten my oxygen company to move much more quickly.

I received a call this morning.  I was dreading it so I let it go to voicemail because I was just getting moving & needed a minute to take a breath to be calm.

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04.15.16
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Raise Your Hand If You Enjoy Being Lied To…

Yeah. That’s what I thought.  Few if any takers on that one.   My snark is back because I was hoping that this rough week would be better.   Well, it is OK for now, because it finally passed but I had some nice drama this morning that I hadn’t anticipated.

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11.15.15
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Hey, Aquaman Crystal! Hurry Up & Get Here! It’s Time To End The “Oxygen Racket”

Normally, I might overlook something like this article, but since I found it through HelpHOPELive (who helps manage my transplant fund), I decided to take a look (it came through their Twitter feed).  I’m glad I did, because I know that even though this is not “prime time” yet, it makes me hopeful.   The reason for that is, while I love what oxygen does for me, I loathe it because it is such a “shell game” & pain point both financially & practically. I can’t stand the “politics” & “business” coming in between what people really need when they need it. It’s a true headache & hassle to stay mobile as needs change & usage of this vital life gas increases with advancement of illness.

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