I really like this video.
It’s a good quick primer of a lung transplant.
It also talks about chronic rejection. It does all of this in layman’s terms.
I think it helps those who may be supporting people going through a lung transplant understand this whole journey better without being too technical or with a slew of medical jargonese.
This lead came yesterday courtesy of my friend, DAP, a heart transplant recipient & fellow blogger.
Please read the latest e-news from the TRIO Action Center. They will then provide a link to a letter you can tailor & send in support of fighting Medicare on limiting transplant drugs & a few others that are now under protected status.
TRIO stands for Transplant Recipients International Organization. They are a nonprofit support group for the transplant community whose focus is on advocacy, awareness, support & education.
I do not qualify for Medicare as of yet, but I am concerned about this because private insurance often takes cues as to what it will or won’t cover from Medicaid & Medicare.
Blocking access to transplant drugs could prove lethal, especially anti-rejection medications. I’m not being dramatic when I say that.
I hope others will care enough to send their own letters in to contest this move for those they know who might need a transplant either now or in the future. Or to support those they know who have had transplant.
Thanks DAP for the alert on this. Hoping by posting this today we keep the pressure up on the issue & raise awareness.
On December 10, 2015 the American Thoracic Society (ATS) & the Lung Transplant Foundation (LTF) jointly hosted a webinar for Lung Transplant Week at the ATS. The clinician presenter was Cynthia Gries, Director of Lung Transplantation at the Florida Hospital Transplant Institute. Continue reading
I’ve spoken to the American Thoracic Society (ATS) before, worked with them professionally through Medscape, & on some other nonprofit projects. I love this organization for several reasons. One of them being that they circulate so much good information on so many different diseases.
The Lung Transplant Foundation (LTF) Foundation also puts great & accurate information out on their social media outlets. That’s how I came to find out about them.
I’m glad both organizations put together this joint effort for this week to raise awareness about lung transplants.
I was chatting with a high school friend earlier today about how I like to “nerd out” on science but that some people’s eyes kind of glaze over when I get going.
Before the regional story broke that I felt compelled to comment on yesterday, I found an article in Scientific American that really had me excited…but took a few reads to process fully before I could comment; since it was high-level, even for me, so I understand the eye glazing now…
AS I LIVE & BREATHE 