Squeaky Wheels Do Get Greased… Eventually

I guess politely laying down the law as I did on Friday must have gotten my oxygen company to move much more quickly.

I received a call this morning.  I was dreading it so I let it go to voicemail because I was just getting moving & needed a minute to take a breath to be calm.

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Raise Your Hand If You Enjoy Being Lied To…

Yeah. That’s what I thought.  Few if any takers on that one.   My snark is back because I was hoping that this rough week would be better.   Well, it is OK for now, because it finally passed but I had some nice drama this morning that I hadn’t anticipated.

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Hey, Aquaman Crystal! Hurry Up & Get Here! It’s Time To End The “Oxygen Racket”

Normally, I might overlook something like this article, but since I found it through HelpHOPELive (who helps manage my transplant fund), I decided to take a look (it came through their Twitter feed).  I’m glad I did, because I know that even though this is not “prime time” yet, it makes me hopeful.   The reason for that is, while I love what oxygen does for me, I loathe it because it is such a “shell game” & pain point both financially & practically. I can’t stand the “politics” & “business” coming in between what people really need when they need it. It’s a true headache & hassle to stay mobile as needs change & usage of this vital life gas increases with advancement of illness.

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Evaluation: Ready Or Not; Here I Come

This HealthDay article really struck a cord when I read it.  It’s not only the kidney population that sometimes has issues with the process of when to refer or list, it’s other organs too.  But it’s compelling food for thought for patients and professionals, as transplantation is a treatment, but not a cure.  They are also costly, but overall may be less costly than other long-term interventions that don’t offer many of the benefits & the possible quality of life improvements that transplants do.  As I was reading that article, certain paragraphs resonated with me, but as much as we try and contribute this to a professional issue of late referrals, I personally believe there’s more to it.

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