Transplant Medicines Being Threatened by Medicare

This lead came yesterday courtesy of my friend, DAP, a heart transplant recipient & fellow blogger.

Please read the latest e-news from the TRIO Action Center.  They will then provide a link to a letter you can tailor & send in support of fighting Medicare on limiting transplant drugs & a few others that are now under protected status.

TRIO stands for Transplant Recipients International Organization. They are a nonprofit support group for the transplant community whose focus is on advocacy, awareness, support & education.

I do not qualify for Medicare as of yet, but I am concerned about this because private insurance often takes cues as to what it will or won’t cover from Medicaid & Medicare.

Blocking access to transplant drugs could prove lethal, especially anti-rejection medications. I’m not being dramatic when I say that.

I hope others will care enough to send their own letters in to contest this move for those they know who might need a transplant either now or in the future. Or to support those they know who have had transplant. 

Thanks DAP for the alert on this. Hoping by posting this today we keep the pressure up on the issue & raise awareness.

 

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Lung Transplant Week: American Thoracic Society (ATS) & Lung Transplant Foundation (LTF)

I’ve spoken to the American Thoracic Society (ATS) before, worked with them professionally through Medscape, & on some other nonprofit projects.  I love this organization for several reasons.  One of them being that they circulate so much good information on so many different diseases.

The Lung Transplant Foundation (LTF) Foundation also puts great & accurate information out on their social media outlets.  That’s how I came to find out about them.

I’m glad both organizations put together this joint effort for this week to raise awareness about lung transplants.

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Another Possible Tool in the Fight Against Organ Rejection

IFL this site. It always has such interesting content on science with a cool twist in its writing that is relatable to a lot of people, geeks or not.

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