Another Interesting & Useful Kickstarter Project

The reality is that once I’m post transplant there are times to avoid germs I will have to wear a mask.  I’m not super jazzed about this as I typically don’t like things over my face (even scarves in the winter on cold days). I will have to get over it, I know… Continue reading

Worthwhile IndieGoGo for “Lungies”

I recently found a great Kickstarter project called Dr. Poket for medication management & I did this blog post about it.  But one of my support group friends/Gift of Life stay buddies posted about this IndieGoGo project the same day (on Facebook) I found this company. The company’s  product account also connected with me on Twitter that same morning.  I was very excited about this device too because one thing that will never go away for me – either now, or after my lung transplant – is the need to measure my lung function on a regular basis…

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Pill Tracking Can Be Time Consuming – But Such Is Life… (Pre & Post Transplant)

Right now, I take about 8 different medicines to keep LAM & TSC in check as well as a few other conditions (like reflux & allergies).  One of them is an immunosuppressant commonly used in kidney transplants.  However, this is nothing compared to what I will be taking post-transplant. I thought this was a good teachable moment for people to understand one of the trade-offs that transplant recipients make & part of the reason why the after-care expenses can be a bit much…

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