“Support” Staff Blocking Care

I’ve had a few instances now where I’ve really lost patience with healthcare staff as of late.  As have other friends with their situations.  It’s a growing trend that needs to be addressed.  Some of these support staff are anything but.

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Article: When You Treat A Rare Patient Like A Common One – Bad Things Happen

I came across this article in Rare Disease Report & it did send chills through my body.

Although, it did not completely surprise me (as horrible as that sounds).

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Viewing Medical Professionals As People

I guess part of the reason I stayed at Medscape for as long as I did (8 years) was because I enjoyed working on content for healthcare professionals.  Doctors, nurses, pharmacists – I met many of them “virtually” or otherwise. Some of them really showed me compassion not only as a colleague but as a person trying to navigate their way through the healthcare system & give back to others & make sense of my own situation.

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Doctor MIA? Insurance Issues? Maybe the Answer Lies In “Uber”-Style Medicine?

I know laying out this “business side of medicine” seems a trite & boring discussion that no one should care about. But it’s anything but that.  This is something everyone, whether they have chronic illness, rare diseases, or not can relate to & I’m sure find equally frustrating when it’s happened.  How many of us have called to book an appointment with their primary care doctor or specialist & been told (less than nicely, I might add), “Dr. X is no longer with the practice”. Or “Dr. X no longer takes (insert name) insurance.”

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