I had to cancel my appointment with Johns Hopkins because I was sick. I’ve been sick since about last Wednesday night, but went to the doctor Thursday. I’m still recovering, but I knew even on Monday I wouldn’t feel up to going to Baltimore yesterday.
Tag Archives: dual listing for transplant
Aches & Pains Not From LAM/TSC
When this posts it will mark the anniversary of a scary moment where I thought my transplant listing would be completely derailed.
On the 8th, a year ago, I was in a very serious car accident that could have ended my life. I remember that time because I fought so hard to recover & it was excruciatingly difficult. I was hit head on by a reckless driver as I was going to exercise.
What A Week!
So my local lung doc busted butt at my appointment on Friday & got my transfer with my previous supplier (before the debacle of this one that cut me off) reinstated.
Food For Thought: Mark Liebenow on Organ Donation
Besides Tim Lawrence & Megan Devine, I also follow Mark Liebenow on Twitter. He also has great perspectives on loss & grief, but he also understands the impact of organ donation firsthand & does his best to make other people aware of how important it is.
Don’t Read If You Haven’t Seen House Of Cards
I’m a huge House of Cards fan. Though I haven’t read the book, I have seen the British mini-series version right after the first season was up. I love it.
HOT BUTTON: Response To “Wealthiest – Not Sickest – Patients May Have Edge In Organ Transplants”
I saw this Science Daily news article in my Twitter feed after arriving back home after a cancelled Social Security Disability testing appointment today. I was already a bit miffed because I should have gotten a call or notice it was cancelled but didn’t. However, when I came across this article I was really ambivalent about it. I know this is a known issue. I am not naive to the ethical issues it raises at all, but I’m not sure this is completely true. At least in how this discussion is framed.