Hi! Remember Me? I’m TSC!

I had another check up Thursday.  My lungs are still doing great,  but I wish I could say the same about my kidneys.

I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.

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Transplant Advances: Simultaneous Stem Cell/Kidney Transplant – Can The Combination Negate Need For Immunosuppressants?

I was hesitant to share this particular news before because I couldn’t find any real sources to verify what phase of clinical trial it was in.  But I find this news highly promising. Yet, I’m trying not to get my hopes up too soon.

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