Carolyn Thomas says it much better than I could. This has been on my mind awhile. I just couldn’t articulate the frustrations as nicely & succinctly as she does here in this post. Worthy of a reblog! Thank you Carolyn for “getting it” & putting this issue out there to conference organizers. Participation shouldn’t be tokenism.
by Carolyn Thomas ♥ @HeartSisters
Dear medical conference organizers,
Thank you so much for inviting me to participate in your conference later this year. It is a real honour to be asked to help represent the patient voice at your prestigious event. I know that inviting patients alongside your impressive international roster of well-respected physicians is new to you. So congratulations on embracing the increasingly important “Patients Included” movement sweeping through medical conferences.
But as I once wrote to patient blogger (and conference speaker) Carly Medosch:
“I can no longer afford to be ‘honoured’ by any more medical conference invitations.”
Allow me to explain:
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AS I LIVE & BREATHE 
Thanks Nikki for your kind words, and for reposting my ‘open letter’ here . . .
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