The nonprofit I partnered with to start my transplant fund, HelpHOPELive, just posted this nice little blog feature. I’m in a good place with things thanks in part to them helping me establish a medical fund & supporting my fundraising efforts.
I once wondered if I would make it to age 30; I’m 38 now. I am Nicole Seefeldt, and I have been living with the chronic lung disease lymphangioleiomyomatosis – more commonly known as LAM – for more than 10 years.
Nicole after an improv workshop
In 2010, I began having a yearly talk with my doctor about a (double lung) transplant. I was feeling fine at the time with my LAM, but my doctor knew it was a good idea to bring it up as soon as possible to prepare me. At every session, the doctor would check my oxygen numbers to determine whether or not getting evaluated for a transplant would be in my immediate future.
For me to stay on my insurance plan, I had to work 30 hours a week. That was a significant reduction to my original work hours, but my energy…
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