Voices of Hope: Living With LAM

The nonprofit I partnered with to start my transplant fund, HelpHOPELive, just posted this nice little blog feature. I’m in a good place with things thanks in part to them helping me establish a medical fund & supporting my fundraising efforts.

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Nikki

I've been a rare disease advocate for quite some time. I have LAM (lymphangioleiomyomatosis) and TSC (tuberous sclerosis complex). My LAM is severe enough that I needed a lung transplant. Now my TSC has progressed to the point where I now need a kidney. I maintain this blog to raise awareness of my diseases, rare diseases, transplant, organ donation & discuss other important healthcare topics and life with chronic illness.

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