Before I knew about the Transplant Hero App & PillSuite, & while I’m waiting for Dr. Poket, I found the Tricella smart pillbox. When it came to me I decided it was too small for me to use every day. I figured it still might work for travel or just for my vitamins alone. So I decided to try it out.
I am cautiously optimistic. I admit I was very excited when I came across this press release that was posted to The Lung Transplant Foundation‘s Facebook page. As usual, I try to temper my excitement with the reality we won’t know what’s possible for awhile or if this is just a step in the right direction.
I realize the drug is only in Phase II trials now, but it does show promise. Continue reading
This lead came yesterday courtesy of my friend, DAP, a heart transplant recipient & fellow blogger.
Please read the latest e-news from the TRIO Action Center. They will then provide a link to a letter you can tailor & send in support of fighting Medicare on limiting transplant drugs & a few others that are now under protected status.
TRIO stands for Transplant Recipients International Organization. They are a nonprofit support group for the transplant community whose focus is on advocacy, awareness, support & education.
I do not qualify for Medicare as of yet, but I am concerned about this because private insurance often takes cues as to what it will or won’t cover from Medicaid & Medicare.
Blocking access to transplant drugs could prove lethal, especially anti-rejection medications. I’m not being dramatic when I say that.
I hope others will care enough to send their own letters in to contest this move for those they know who might need a transplant either now or in the future. Or to support those they know who have had transplant.
Thanks DAP for the alert on this. Hoping by posting this today we keep the pressure up on the issue & raise awareness.