So today, I’m trying not to think. Just be. No schedule or plans or map. No deep thoughts or insights.
I guess part of the reason I stayed at Medscape for as long as I did (8 years) was because I enjoyed working on content for healthcare professionals. Doctors, nurses, pharmacists – I met many of them “virtually” or otherwise. Some of them really showed me compassion not only as a colleague but as a person trying to navigate their way through the healthcare system & give back to others & make sense of my own situation.
I know laying out this “business side of medicine” seems a trite & boring discussion that no one should care about. But it’s anything but that. This is something everyone, whether they have chronic illness, rare diseases, or not can relate to & I’m sure find equally frustrating when it’s happened. How many of us have called to book an appointment with their primary care doctor or specialist & been told (less than nicely, I might add), “Dr. X is no longer with the practice”. Or “Dr. X no longer takes (insert name) insurance.”
This HealthDay article really struck a cord when I read it. It’s not only the kidney population that sometimes has issues with the process of when to refer or list, it’s other organs too. But it’s compelling food for thought for patients and professionals, as transplantation is a treatment, but not a cure. They are also costly, but overall may be less costly than other long-term interventions that don’t offer many of the benefits & the possible quality of life improvements that transplants do. As I was reading that article, certain paragraphs resonated with me, but as much as we try and contribute this to a professional issue of late referrals, I personally believe there’s more to it.
Today is a day where I woke up not feeling well. My energy was off. But yet, I still got up & did something with my morning. As Ronda Rousey says, “I’m not a DNB (Do Nothing Bitch)!” I think I need to buy one of her shirts & wear it for inspiration on days like today. (Though I admit, my interpretation of being a DNB might differ from others. I’m totally picking up what Ronda’s putting down with it at it’s core, however).