Hi! Remember Me? I’m TSC!

I had another check up Thursday.  My lungs are still doing great,  but I wish I could say the same about my kidneys.

I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.

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Changes to Lung Transplant Scoring – Will It Impact Me?

This may or may not pertain to my situation, I don’t think ultimately it will. Yet, the more successful attempts & changes to level the playing field in scoring for transplant, all the better. So maybe indirectly, rather than directly.

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Bag of Mixed Blessings

So this article popped up in a few of my groups recently & on Facebook pages I follow (like The Lung Transplant Foundation‘s page).  I found this intriguing for a few reasons.

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