Hi! Remember Me? I’m TSC!

I had another check up Thursday.  My lungs are still doing great,  but I wish I could say the same about my kidneys.

I started back on Rapamune (sirolimus) yesterday, so I’m confident that might help when it fully kicks in, as it did when I was pre-transplant.

Continue reading

Advertisement

Changes to Lung Transplant Scoring – Will It Impact Me?

This may or may not pertain to my situation, I don’t think ultimately it will. Yet, the more successful attempts & changes to level the playing field in scoring for transplant, all the better. So maybe indirectly, rather than directly.

Continue reading

Bag of Mixed Blessings

So this article popped up in a few of my groups recently & on Facebook pages I follow (like The Lung Transplant Foundation‘s page).  I found this intriguing for a few reasons.

Continue reading